From my heart ...

From my heart ...

Monday, June 21, 2010

Our Princess - Lindsey Brooke Bowser

Lindsey Brooke Bowser is our precious 7 year old granddaughter. 

She is also a Princess - our Princess!

Princess Lindsey has Tay Sachs Disease.  Tay Sachs is a fatal genetic disorder that results in progressive destruction of the nervous system.  It is caused by the absence of a vital enzyme called hexosaminidase-A (hex-A).  Without hex-A, a fatty substance called GM2 ganglioside accumulates abnormally in cells, especially in nerve cells of the brain.  This ongoing accumulation causes progressive damage to the cells.  Over time, and in addition to recurrent/frequent seizures, the child becomes blind, cognitively impaired, paralyzed, and non-responsive.

Princess Lindsey has been in the Pediatric ICU of Mission Hospital in Asheville, North Carolina since Friday night, June 18th, when she lost her ability to breathe and her heart failed her.  Her life was saved due to the quick response of her sweet mother, Erin.  At the time of this writing, Lindsey remains on a ventilator, and is getting IV antibiotics as well as dopamine and epinephrine.

Your prayers for our Princess are greatly appreciated.  Please continue to pray for Lindsey, and her mom and dad (Erin and Dan), and for all of us who love her so much.

Outta Control

I'd like to think that I'm far from being a control freak.  I'd like to think that I'm more than willing to allow others to ...