From my heart ...

From my heart ...

Thursday, June 24, 2010

Learning to Lean on Jesus ... Still.

I have fond memories of getting all dressed up in my Sunday best when I was a little girl, in preparation for worship at the small chapel we attended in Dearborn, Michigan. 

Even now, as I close my dog-tired eyes in quiet reminiscence, I can still hear the glorious sound of the chapel's sanctuary being filled with the precious voices of dear, devoted Christians harmonizing while proclaiming that they were learning to lean on Jesus.

Are you familiar with the song?

     Learning to lean.
     Learning to lean.
     I'm learning to lean on Jesus.
     Finding more power than I'd ever dreamed,
     I'm learning to lean on Jesus.

     The joy I can't explain fills my heart,
     Since the day I made Jesus my King;
     His blessed Holy Spirit is leading my way,
     He's teaching and I'm learning to lean.

     There's glorious victory each day now for me,
     Since I found His peace so serene;
     He helps me with each task, if only I'll ask,
     Every day now, I'm learning to lean.

I'm STILL learning.

Monday, June 21, 2010

Prayers for Lindsey

We are so thankful for all the prayers that have gone up for Lindsey since her diagnosis of Tay Sachs Disease several years ago, and especially now since her recent admission to the Pediatric Intensive Care Unit at Mission Hospital in Asheville, North Carolina.

I talked to her Daddy (Dan) tonight, and he reports that though Lindsey's condition is still critical, she is stable.  Her temperature is back to normal.  And, the medical providers have decided to try to wean her from the ventilator.  We pray that the weaning is successful, and that she is able to once again breathe on her own.

I took a two-hour walk outside this evening, and I was reminded of words to a song:
    
     He walks with me and He talks with me;
     And, He tells me I am His own.
     And the joy we share as we tarry there,
     None other has ever known.

Though I walked out the door by myself, I was not alone.

"In the multitude of my anxieties within me, (Jesus') comforts delight my soul."
     - Psalm 94: 19

"Truly, my soul silently waits for God."
     - Psalm 62: 1

"Grandchildren are the crown of the aged."
     - Proverbs 17: 6

... Lindsey is indeed my crown - but, she is the princess.

Our Princess - Lindsey Brooke Bowser

Lindsey Brooke Bowser is our precious 7 year old granddaughter. 

She is also a Princess - our Princess!

Princess Lindsey has Tay Sachs Disease.  Tay Sachs is a fatal genetic disorder that results in progressive destruction of the nervous system.  It is caused by the absence of a vital enzyme called hexosaminidase-A (hex-A).  Without hex-A, a fatty substance called GM2 ganglioside accumulates abnormally in cells, especially in nerve cells of the brain.  This ongoing accumulation causes progressive damage to the cells.  Over time, and in addition to recurrent/frequent seizures, the child becomes blind, cognitively impaired, paralyzed, and non-responsive.

Princess Lindsey has been in the Pediatric ICU of Mission Hospital in Asheville, North Carolina since Friday night, June 18th, when she lost her ability to breathe and her heart failed her.  Her life was saved due to the quick response of her sweet mother, Erin.  At the time of this writing, Lindsey remains on a ventilator, and is getting IV antibiotics as well as dopamine and epinephrine.

Your prayers for our Princess are greatly appreciated.  Please continue to pray for Lindsey, and her mom and dad (Erin and Dan), and for all of us who love her so much.

Outta Control

I'd like to think that I'm far from being a control freak.  I'd like to think that I'm more than willing to allow others to ...